The following post is also on The April Diaries.
I hardly ever get political on this platform. But as a lifestyle blogger and influencer, it’s important to be an advocate for causes that I care about — especially when they have to do with human rights. In fact, I was once on a (very) beaten path of becoming a human rights attorney. But after many contemplations, writing and publishing is my truest path to success and overall fulfillment.
Moreover, I need to have a heart-to-heart. Yesterday (Fri., March 18 2022) I was on the phone, dialing multiple numbers, on the hunt for new, possible, and competent PCP’s whom I could actually rely on for my recent diabetes diagnosis. What’s coincidental, but also in divine timing, is that I had received a DM from a friend from high school. One of the imperative and truest thing(s) she wrote to me was that being a young woman and finding compassionate healthcare is challenging, but advocating yourself is the most important thing.
But come to think of it, getting compassionate and competent healthcare as a young woman is more than challenging. It is like the Hunger Games, essentially. But why should we have to fight for something that is a human right?
It bothers me greatly that the United States is ostensibly the leader of the free world, yet we are so far behind in healthcare. Is it out of laziness? Is it because everything is supposed to be a joke? Well, when it comes to healthcare, getting medication for your condition — no matter what it/they may be — should not be a problem, nonetheless a battle.
It bothers me, especially because this past week alone, I had to pay out of pocket for my diabetic equipment just so I can test my blood sugar. Why? I have no access to my endocrinologist until the end of the month of April. So until then, I don’t know who I have to slay in order to get proper refills that insurance will cover. I realize this is more information than anyone will really need to know. However, I am a storyteller, after all. And for me, being a storyteller is the one way I get my voice across for issues that are important to me.
As a member of the American Diabetes Association, I chose to do my civic duty and email my Rhode Island senator, congressman, and representative. Thus far, I’ve received word from Senators Jack Reed and Sheldon Whitehouse. What struck me, particularly from Senator Whitehouse’s letter, is the following:
Dr. Frederick Banting discovered insulin 100 years ago and sold the drug’s patent for $1, reportedly saying, “Insulin does not belong to me, it belongs to the world.” Unfortunately, Dr. Banting’s hopes of insulin being affordable and accessible to all have not been realized. Between 2012 and 2016, the annual cost of insulin nearly doubled. Today, many Americans struggle to pay for insulin, some resorting to deadly rationing in order to afford this costly drug.– Senator Sheldon Whitehouse
Ahh, how we all wish for simpler times when the basic necessities would cost less than $5. (That’s even less than gas prices nowadays — ugh!) I’m no expert in the depths of American history or economics, so I do have to pose the question: when did basic necessities become inaccessible?
I also have to say, I am scared once I eventually run out of my (short) supply of insulin. It doesn’t help that I am worried about my blood glucose levels constantly. But you can say that my “American Dream” has been modified to fit my current situation. How do we make our “American Dream” come true? Most people would think we “work to live,” but making your voice heard is imperative, too. Think about it.
a very fed-up April 💙